Support Networks for Independent Young Adults
It doesn’t matter if you’re shy or outgoing (if you typically thrive
on human contact or prefer to be alone) or if you’re somewhere in between—people
generally need to be around other people. This is especially true
during times of crisis or when facing a personal challenge.
Many social systems and support networks exist to help people with
bleeding disorders. Finding the group that best fits your needs may take some work
on your part, but it will be well worth the effort in the long run.
Here are some ideas on where to look:
- Your Hemophilia Treatment Centers (HTC).
- HTCs offer more than just medical care. Let them work with you so you can
live your life to the fullest!
To find an HTC near you, click on Hemophilia Treatment Center Quick Finder.
- Local chapters of the National Hemophilia Foundation (NHF) and other bleeding
- Check out the calendar of events and activities. You’ll find fun things to
do and interesting people to meet.
To find a local NHF chapter, click on The Chapter Center.
- The National Youth Leadership Institute (NYLI).
- The National Hemophilia
Foundation’s leadership training program for young adults aged 18-25 years who have
demonstrated leadership skills in their community. Youth Leaders implement youth
events focusing on prevention and self-empowerment in their local areas.
For more information, click on About NYLI.
- Mentor programs.
- Involve an experienced person (the mentor) assisting another
(the mentee) in developing various life skills to enhance the mentee’s personal
growth. These programs exist throughout the United States and might be something
for you to consider, either as a mentor or mentee.
- Online communities.
- A popular way to give and receive support is via Internet chat rooms and discussion boards.
These online forums are a great way to connect with others and share information. However,
you need to be aware of some of the dangers associated with online communication,
ranging from inappropriate conduct to misuse of personal information.
- Camps catering to the bleeding disorders community offer another great way
to give and receive support. Some camps have counselor positions and other jobs