The National Hemophilia Foundation (NHF) is pleased
to announce the availability of a new, educational
Web-based video developed for youth with hemophilia
and their parents, friends, teachers, nurses, and coaches.
How to talk to your friends about hemophilia? A group of friends ask their friend Billy questions about his hemophilia.
This video was developed by the Centers for Disease Control and Prevention (CDC), Division of Blood Disorders in collaboration with NHF's HANDI and ICF International.
Welcome to NHF’s Steps for Living Web Site!
Steps for Living is your one-stop resource for information on bleeding disorders for kids, adolescents, parents and health educators to promote healthy living for the whole family.
Newly diagnosed? You are not alone. We have tons of practical resources for you.
Trying to figure out how to help your child make the shift from high school to college? We can help.
Created by parents, patients, and health care professionals from the bleeding disorders community, the Steps for Living Web site provides information and resources to help you and your family adjust to life with a bleeding disorder as your child grows and matures.
Steps for Living was designed to be a practical tool kit to help families deal with the daily challenges of living with a bleeding disorder. There is information and activities for all age groups. We hope you find it useful and helpful.
If you would like more in-depth information about anything on our Web site, please feel free to contact National Hemophilia Foundation's HANDI resource center. The Information Specialists at HANDI are there to answer your questions, and always protect your privacy. HANDI staff members are available Monday through Friday, 9 am to 5:30 pm EST, to answer your requests. Requests can be made by phone to 1-800-42-HANDI (1-800-424-2634), emailed to email@example.com or faxed to (212) 328-3799. To access the catalog, click here.
We would like to thank all the volunteers, as well as our CDC program partners, who helped us develop this resource. We would also like to thank Pfizer for their financial support for this program.
It can be overwhelming to learn that you or a loved one has a bleeding disorder. You may have concerns over how this will impact your life and those around you.
In this video, you’ll learn how several individuals and families have successfully met the challenges they faced in living with a bleeding disorder.
The information contained in this Web site is provided for your general information only. It is not intended as a substitute for visiting with your physician, nurse, or social worker. The National Hemophilia Foundation (NHF) does not give medical advice or engage in the practice of medicine. NHF under no circumstances recommends particular treatments for specific individuals and in all cases recommends that you consult your physician or local treatment center before pursuing any course of treatment.
This Web site is supported by the Centers for Disease Control and Prevention (CDC) Cooperative Agreement 5U27DD000534-02: National Hemophilia Foundation’s Proposal to Prevent Complications of Bleeding Disorders.
Its contents are solely the responsibility of the authors and do not necessarily represent the official views of the CDC.